The school isn’t doing anything to help me get back on track. The teachers treat me like a rebel who skips school for the fun of it but I’m not! I’m not defiant! When I ask for help to move I’m told off because “you can do it yourself” The other thing is there’s opportunities at our school for people who are good at academics and you need a good attendance to even be considered for it. It might be that I get too drained from school to do anything at the end of the day. I’ve always been great at school academically but I don’t know if I’m going to be able to stay that way. I’ve barely been in school which at first was great, then it was just depressing and horrible. I’m 13 years old and since the start of the year I’ve had a major health crisis. NIH hEDS Information, Criteria & Management We cannot verify where the money is going, and to protect all parties, we do not allow these posts. This subreddit does not allow posts asking for financial help. If you want to post memes anytime, check out /r/ZebraMemes or other meme subreddits. Any meme submitted on other days will be removed. This is a bannable offense and will not be tolerated. In order to avoid further bullying and harassment, it is now against subreddit rules to make comments regarding the morality of having children with EDS. The decision to have children is an extremely personal one-Ehlers-Danlos syndrome or not. Sharing your failures or successes with treatments is fine. Soliciting or giving medical advice is not allowed in this subreddit. It is best to avoid giving medical advice over the internet in general. NOBODY HERE IS A VERIFIED MEDICAL PROFESSIONAL. Instead of making a "could I have EDS post?," read the resources provided here first! Please remember that only a doctor can diagnose you. The wiki has information on what Ehlers-Danlos syndrome is, the different subtypes, information on pursuing a diagnosis, and more! This is a welcoming place for those affected (or those simply wanting to learn more) to ask questions, share successes and failures, feel less alone, and discuss everyday life.Īccess the wiki index here. NOTE: With Classical EDS there will need to be a much higher vigilance for injury because of the skin fragility.This is a support sub for those with Ehlers-Danlos syndrome (all types) and HSD-diagnosed or waiting to be diagnosed. Non weight bearing exercise promotes strength and coordination.If finger and hand strain occurs, may need writing adaptions.Position sense may be off in some of these individuals.Important to increase both core and extremity strength.Low resistance exercise may increase muscle tone.Joint stability can be improved through exercise programs to strengthen muscles.Frequent overextension of joints can cause traumatic arthritis.Avoiding activities that overextend or lock joints.Individuals should participate in activities that do not cause joint pain and finding less painful ways to move and perform certain tasks.Learning to protect the joints will help prevent further injury and keep individuals active.If you live in New England (USA) and qualify, Northeast Passage offers Therapeutic Recreation and Adaptive Sports programming. Children with dysautonomia may have difficulty in extreme temperatures and may require air conditioning on very hot days and may need to avoid very cold temperatures. Individuals may require a 504 plan.Īn alternative health related credit should be provided if PE accommodations are not possible. An individual with EDS may require no accommodations or many.
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